"Accessing Specialist Services and Sharing of Information with GP"
About: Neurosciences Unit Neurosciences Unit Mount Claremont 6010
Posted by Huntington (as ),
My mother travels to Perth from her home (4.5hr one way trip) to consult with Neuroscience Services, as she has Huntington's Disease. Being elderly this is very taxing on both my parents as it requires a day travel, overnight stay and then another day driving home with consult lasting at best 15 minutes.
Have requested consult via Telehealth so that Mum's local GP can be involved in the discussions and ongoing care planning - this was done once but the acoustics in the Neurosciences room was so bad that on-one was able to clearly hear what was being discussed. To date no further consults via Telehealth have been able to be set up, as I understand the Neurosciences team is unable/unwilling to provide this service.
Repeated requests for information to be forwarded / shared with local GP has never happened, so Mum's GP is dependent upon my Mum & Dad giving updates rather than a shared care plan for ongoing treatment between Neurosciences and GP. Mum has a regular monthly GP meeting to ensure ongoing care is provided with Dad as the primary care-giver updating the GP with sharing of information rather than GP/Specialist collaboration.
There is a Neurosciences Nurse / Practitioner in Albany, but they have no information from Neurosciences on Mum's treatment or ongoing care needs.
Given that we are to work collaboratively with professionals in the partnership of patient care, the system is failing my parents in this instance.
The local GP is doing a great job, but is frustrated that no information is forthcoming from the Neurosciences team on Mum's treatment or care plans.