"Paediatric Specialist Services around hearing loss"

About: Royal Children's Hospital / Paediatric audiological medicine

(as a relative),

Our son is hearing impaired and has other borderline impairments. His hearing levels have deteriorated significantly in the last 18 months. We were referred by our ENT to the specialist services at the Royal Children's Hospital in Brisbane. This included pediatric, neurology and recently genetic services, seen over the last 15 months. The braid aim was to identify any cause or elements that could be acted upon to halt or slow the rate of loss.

After previously being underwhelmed with services that focussed on cause rather than management we were a little apprehensive about investing our time over again. On the whole, there have been some hits and misses in terms of care. The first thing worth noting is that appointments were generally on time - great for working parents! Initial interaction with pediatrics was great - thorough investigation of past history. Also, the Doctor called us a number of times to advise the results of certain tests, which was a pleasant surprise!

Other areas were more frustrating. When we go to such specialists we are expecting them to take leadership and guide us with their expertise. Many times we felt we were being asked to set the agenda for what treatment should be explored, or identify what 'conditions' are important or not.

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Responses

Response from Patient Opinion

Dear Kevin

I’m so pleased to hear that the effort staff in outpatients, including the clinicians, have made over the past few months has paid off in terms of the clinic being run on time.

It used to be that doctors simply told patients what to do.

Thankfully those days are over and we now try to involve the patient and family in the decisions around care as much as possible.

Sometimes the amount of information given can be overwhelming and the decision very complex. Doctors work hard to be sure they understand what outcome is most important to the family and patient. The down side of this is that it can feel as if the doctors are asking you what to do. In fact what they are trying to do is give you the options in an unbiased way so that you feel free to make the best decision for your circumstances.

I am sure that in future if you feel that you would like more guidance then the doctors would be happy to go over the choices with you again. Your appointment is your time to get those questions answered. Please let us know if we can help further

Nicki Murdock

Acting Executive Director Medical Services

Royal Children’s Hospital Brisbane

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