"I have been given no real information about how my treatment fits in with my ability to work"

About: Charters Towers Hospital

(as the patient),

A little over ten years ago I began falling after a cartilage repair. X-rays showed a mass reported as a trabecular. I had my knee checked some years later by an orthopaedist after difficulty walking. In 2010 I fell and couldn’t get up and was told to bed rest for a month. Right Knee was painful. Right leg was weak. Happened again in 2011 and 2012 and a bakers cyst was found to have occluded the popliteal vein and was pressuring its accompanying nerve. Mid 2012 I was operated on and I gained a major increase in mobility immediately as well as a much better outlook. Late 2012 right leg ballooned and a DVT was found. The warfarin I was given was rough to begin with. Made me very depressed. I was told that this happens and, like the nurse said, it passed quite rapidly. In my opinion it is a hard medication to live with but it does seem to do the job. I have noticed that I can walk up stairs unaided and ride a bike to a standstill and increase pressure on the pedals and the bike moves again. I could not do this previously.

I have been given no real information about how my treatment fits in with my ability to work. There are a lot of times when I don’t feel well and if I do any work (even cleaning up) I will sleep for 3-4 hours after. This isn’t me. Antidepressants don’t appear to improve things for me but pain meds do. I have been diagnosed with chronic pain syndrome and I think the problem may be the cyst. From what I have read Epidemiological studies point to raised deep vein pressure as causing all kinds of vein damage. I can get no real answer to getting back to being productive. I don't blame the Charters Towers Hospital as I believe they are dangerously under resourced and in the present climate there may be little they can do. From what I have experienced there seem to be procedural problems which indicate to me that some people are working to an impossible schedule.

I have been waiting for 5 years to get my cyst fixed and I am told it should occur in 12 months. Unless a surgeon can tell me otherwise I would like that done ASAP under the public system as I don't have the resources to do it privately. Maybe I will have a pulmonary embolism and expire before they need to do anything. As I am writing I am experiencing pain on inspiration rapid heart rate and I feel lousy. I started my working life as a trainee nurse and was a pharmacist before I got sick so I believe I know what happens in the current situation. I would rather die than be labelled a hypochondriac!

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Responses

Response from Patient Opinion Australia

This response has been posted by Patient Opinion on behalf of the Townsville Hospital and Health Service.

Dear Thuddeus,

Thank you for your feedback. We would be pleased to hear from you to discuss your concerns. Please contact our Client Liaison Office on 07 4433 1074 or email tsv-hospital-client-liaison@health.qld.gov.au at your convenience.

Kind regards,

Nikki Francis

Client Liaison Officer

Townsville Hospital and Health Service

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