"This Disease is not just in my head"

About: Royal Brisbane and Women's Hospital The Prince Charles Hospital

(as the patient),

I have had ongoing issues for a number of years no one could diagnose, turns out this was a rare disease in Australia. No I haven't been overseas, yet I have the illness that apparently doesn't exist in Australia.

As anyone with this disease knows, while in the chronic stages the symptoms are severe.

I have presented to emergency 10-15 times to both RBH and Prince Charles Hospital, each time I'm told there is nothing that can be done, why am I coming here.

I'm sorry that when my heart slows to a standstill, I get uncontrollable body tremors and collapse on the floor that I present to an emergency department. What else am I meant to do?

I have been unable to function for close to 14 months now, I can no longer drive, I can't walk more than 50m with becoming chronically fatigued, and I can't even lift my kids to play with them.

The reason I attended the RBH is because they have an infectious disease ward and I have an infectious disease, yet I'm filled with painkillers and pushed out the door.

Each place I go I get treated like it’s all in my head despite showing them the blood test with a positive result showing the infection.

I come in with a problem like this and get some rude doctor that tells me they can't assist, yet the person next to me had a cold because they just got back from overseas and they treated them no questions asked.

Do you have a similar story to tell? Tell your story & make a difference ››