"Still going waiting for plastics"
About: Fiona Stanley Hospital Fiona Stanley Hospital Murdoch 6150
Posted by cosmo1 (as ),
To cut a long story short, I got an infection in my arm in 2016. I believe they stuff about at FSH so much between departments who don't communicate that I left the hospital untreated and my GP gave me antibiotics for six months, there was pain in my ulna bone all the time.
In my opinion, the treatment was so bad that it left me with a fear of hospitals.
It seemed to have gone this infection, when it came back in the first quarter of last year. So I had an operation to take samples so they could pinpoint the bugs which turned out to be nasty as. I have just finished taking a long course of steroids for Lupus, so my immune system is not that good. Now I am off all steroids
I am on the Autism Spectrum and have a phobia of hospitals. There is a care plan on my file drawn up by the people my GP has gotten to help me get through this and they are from mental health and infectious diseases. I was told late last year that unless this infection was cut out, my body could not fight it as they had given me meds for six months and it was not getting better and it was a nasty bug - hard to kill.
I have now been waiting for plastics to send me another letter so this can move as my wrist is getting worse even though I am still on meds for it.
I don't want another operation or another PICC line (peripherally inserted central catheter), but if it means I get rid of this infection and will help I will do this. I think the hold up is plastics, who seem to have forgotten me now. I've been waiting for another letter to see them, but nothing and as I said this infection is slowly getting worse. My bone is so painful and so is my wrist I cannot use it, so I cannot do the things I like.
What I want is to just get a fast appointment at plastics so they can decide what to do. I believe this needs urgent attention now. I feel stuffed around yet again !!
It seems there is a big lack of communication between some departments. It seems some departments want to go there own way and with me that will not work if we are not all on the same page, which is why the care plan was written out. This is so painful, so stressful and a nightmare come true, all I want now is treatment to fix this. By now, I think anyone else would have been to ED, but my phobia keeps me away. I am being helped but they cannot do anything now until plastics get there act together. how would you like to live with this pain and stress for so many months now!
Seeing the whole me
Being listened to
Involved in decisions